Finnish Real World-World data sources – National registries Finland provides a broad range of national Real-World-Data set that can be utilized for research.
Below is a summary of the most essential data-sets, including links to additional information about each data-set. Similar to the other Nordic countries, the data can be seamlessly linked between the different registries.
If you are interest to learn more about the potential utility of these registries, don’t miss this upcoming webinars:
- 27th of October: RWE opportunities in Finland
- 24th of November: Utilizing Finnish nationwide RWD to create an external control arm to a clinical trial
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Registry name |
Brief description |
Coverage from: |
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Data on the activities of health centres, hospitals and other institutions providing inpatient care and on the clients treated in them as well as on home-nursing clients. |
1969 |
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Register of Primary Health Care Visits (avoHILMO) Outpatient primary health care, i.e. health care that does not require hospitalization Home care, i.e. health care and medical treatment given at the patient’s home |
2011 |
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National registry of all the diagnosed cancer cases |
1953 |
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Data on reimbursed medicines delivered from pharmacies. |
1993 |
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Data on all prescribed medicines and renewal of prescriptions. |
2010* |
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The Twin study cohort consist of longitudinal data collected by questionnaires and interviews, done in minimum of four waves covering over three decades, and data and samples collected during several sub-studies. |
1958 |
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National registry on causes of death. |
1971 |
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Up-to-date subset of Hlmo useful for monitoring healthcare service usage, availability of care, population health and epidemic control, health promotion and care standards. |
2011 |
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Data on all births with birth weight of more than 500 grams and gestation of 22 weeks of more. |
1987 |
* Complete coverage from 2017 ** multiple large twin cohorts, see web page for coverage More information: • Extensive list of Finnish registries: Data resources - Data resources catalogue (aineistokatalogi.fi)