The Patient's Voice. Digitally: How to co-create international digital real-world evidence studies

There can be huge benefits to developing and implementing digital real-world evidence (RWE) studies with patients, advocates and clinicians. But how do you get them on board, and manage their different needs and expectations? How do you educate them about study best-practices, including the impact of GDPR? How do you provide access (and to whom) to the dataset you will be creating? Is it possible to link your dataset with existing registries? This webinar will provide practical guidance and best-practices on the development and implementation of international digital RWE studies, including case studies (e.g. from oncology and from rare/orphan diseases) from Vitaccess' extensive experience of developing and running these studies.

Speaker bio:

Mark Larkin is the CEO & founder of Vitaccess.

He has more than 20 years of experience in consulting, specializing in European P&R for the last 10 years. Mark founded Vitaccess to harness innovative smartphone and dashboarding technology to build the Company's multi award winning MyRealWorld(tm) platform, offering real-time digital RWE research. Mark has led all Vitaccess' international RWE studies, across oncology and rare/orphan diseases, and led partnerships with patient advocacy organisation (now >30). Mark has a BA and MA in Natural Sciences and a PhD in experimental psychology.